Self-Help Groups for Parents of Children with Intractable Diseases Ebook

A Qualitative Study of Their Organisational Problems

Publication: Dissertation.Com
Is my Device Supported?

You're about to purchase a Downloadable Ebook

Hi, sorry for the interruption!
We're repeating some important information here to ensure that you're making an informed purchase. Please review it.

  • Don't get caught unaware. Preview ebook and open the sample ebook on each of your intended devices before continuing.
  • You will need a Free 3rd-party application that can read the intermediate .acsm file you will receive as download. PDF/Epub format is downloaded automatically by the application thereafter. Please install the necessary software first on your intended device of use.
  • - Printing 25 pages every 30 days is allowed.
    - Copying 25 text selections every 30 days is allowed.
  • Refund Policy
    Refunds are not allowed after the ebook is opened so please open the ebook directly on your intended device. Refund requests should be recieved within 7 days after download is made available. Of course, if you get an incorrect ebook ( different from what is mentioned in the title) or if the ebook doesn't open on the initial device, then we'll assist with fixing the issue or get you a refund if a timely fix isn't available.
  • Customer Service
    We currently only provide ticket (online form submission) or email support. Rest assured that you're in good hands; customers like our professional service!
I have previewed the ebook and read the requirements and terms.

Language: English
Publication Date: October 2005
Pages: 474
File Size: 14429 Kbytes

Restrictions set by Publisher:
- Text-to-speech feature is available.
- Printing 25 pages every 30 days is allowed.
- Copying 25 text selections every 30 days is allowed.
- Free application Adobe Digital Editions, Aldiko reader, or Bluefire reader required .
Change Region
ISBN: 9781599421926   Should I buy this Ebook?   Write a Review


The purpose of this dissertation is to examine the organisational problems, and in particular the leadership problems, of self-help groups in Japan for parents whose children have intractable diseases. Since 1993, I have been involved with these parent groups, and have conducted three sorts of qualitative interview: thirteen informal conversational interviews, four focus group interviews, and fourteen guided interviews, involving the members of twenty-one parent groups. Part of the research was carried out as participatory action research in which a research team was formed and authorised by the parent groups. My findings have shown that the groups’ most serious problems lay not outside their groups but within, with the shortage of suitable leaders who volunteered in the activities. Three different sorts of account were given concerning the leadership shortage. They included justification, accusation and exposure: the participants claimed that taking care of ill children caused the leadership shortage; selfish members created it; or the determination of older leaders to remain at the helm prevented new members from becoming leaders. Cognitive maps have been drawn of these situations. I have explained the theories behind the free-rider and social loafing problems, and the leadership traps confronting the parent groups, and have applied attribution theory to the results. I have discussed the practicality of consultation for group leaders, and argued that organisational socialisation should be activated in the parent groups while propounding the island-within-a-lake model of parent groups. Methodologically, I have discussed social research within Japanese culture and the ethical issues pertain to participatory action research.


This Child of Mine: A Therapist's Journey ebook cover
Save 11.06%
SHOUT! SLEEP! ebook cover
Save 10.61%

Should you buy this Ebook?

We've put together a collection of resources to help you make a decision regarding whether you should buy this Ebook from us.

  1. Is your device one of these? Ebook reading software will work on the following devices: Windows, Mac, Android 2.2+ Devices, IPad (iOS 3+), IPhone (iOS 3+), Kindle Fire. Several other devices are also supported by the software.
  2. Compare prices. Our price is $19.00. If you would like to research our competitors to see their prices. Here're some places to look:
  3. Why should you buy Ebooks from

    We've had 1000s of downloads so far and with over 300000+ Ebooks to choose from, is becoming a favorite Ebook Store for many. Allow us to win you over with our competitive pricing, upfront policies and diligent customer service.

    We're Upfront:

    • Every Ebook page on has information on restrictions that publishers have placed on the Ebook along with a clear indication of software required to read the Ebooks.
    • If ratings for an Ebook are available from one of several sources online, then we've attempted to get those to help you make a better purchasing decision about the Ebook. Reviews from Goodreads (a popular reviews site) are provided on the same if they're available.
    • In most cases, we've also attempted to get you links to the Ebook on our competitor's site so that you can compare prices with relative ease.
    • We use McAfee to scan for any vulnerabilities in the system to ensure that any information that you give us does not fall into the wrong hands.
    • We use Paypal, a trusted 3rd party payment provider to accept Payments -- your payment information doen't reside with us. Any information that does end up with us is safe.

After installing the appropriate app for your device, try a Sample Download (Sherlock Holmes from Project Gutenberg) before purchase. The sample is only for checking device compatibility.

Check below for device compatibility and any free 3rd-party software requirements. Choice of what ebook reading app to use is yours, we only present a few common apps that several customers of ours have preferred. You should be able to transfer your purchase to more than one (upto 6) compatible devices as long as your ebook-reading apps have been registered with the same Adobe ID before opening the file.


Windows/Mac PC or Laptop

Free app Adobe Digital Editions required. Note that this software is not the same as Adobe Reader.


Android 2.1+

Free app Aldiko Reader or Bluefire Reader required.

Kindle Fire (and any Android based Kindle models)

Free Kindle Android app Bluefire Reader required.


IPad or IPhone

Free app Bluefire Reader required. Kindly review their tutorial for the requirement (note that while they're talking about library ebooks, same applies to your purchased .acsm file) -- feel free to use the sample download for testing. Tutorial .

Other E-Reader

Several Other devices supported

Devices like Nook are supported via the free application Adobe Digital Editions . This software is not the same as Adobe Reader. Please check compatibility of your device before purchase.

Self-Help Groups for Parents of Children with Intractable Diseases