The Official Parent's Sourcebook on Autoimmune Lymphoproliferative Syndrome
A Revised and Updated Directory for the Internet Age
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Description
This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to autoimmune lymphoproliferative syndrome, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on autoimmune lymphoproliferative syndrome. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Autoimmune Lymphoproliferative Syndrome: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Autoimmune Lymphoproliferative Syndrome; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Autoimmune Lymphoproliferative Syndrome; Chapter 5. Books on Autoimmune Lymphoproliferative Syndrome; Chapter 6. Multimedia on Autoimmune Lymphoproliferative Syndrome; PART III. APPENDICES; Appendix A. Researching Your Child’s Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Child’s Rights and Insurance; Appendix E. More on the Immune System; ONLINE GLOSSARIES; AUTOIMMUNE LYMPHOPROLIFERATIVE SYNDROME GLOSSARY; INDEX. Related topics include: autoimmune lymphoproliferative, lymphoproliferative autoimmune.
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